Comments on: Diagnosed with Crohn’s Disease http://www.coping-with-crohns.com/70/diagnosed-with-crohns-disease/ Thu, 02 Feb 2012 16:11:28 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: madaise http://www.coping-with-crohns.com/70/diagnosed-with-crohns-disease/comment-page-1/#comment-85 madaise Sat, 05 Jun 2010 14:44:15 +0000 http://coping-with-crohns.com/?p=1#comment-85 Yes.. this is one of my biggest complaints about crohn's disease (and Ulcerative Colitis), the lack of pain medications doctors make available. I am not a "text book" case when it comes to my crohn's disease - a huge part of my disease is pain, plain and simple. If I didn't have a doctor willing to give me pain medication (at his suggestion even, not mine), I'd likely find a way to get from some place else. I cannot live life in that sort of pain. I truly feel for your daughter. No one should have to live in pain. It isn't living if you are in pain all the time, or even half the time... You can't do normal things with your family, etc. And to have people seemingly judge on top of it.. it's just worse. I hope your daughter finds a good doctor - that's hard to do too. I went through my own issues with poor quality doctors (at least in regards to my situation) and then listened to my sister this past winter as she did the same.. it's so frustrating. With this disease (or UC, as my sister has), you don't feel like doing any more than you absolutely have to in order to get through the day.. to do anything more just seems like a mountain you don't have the energy to climb. My sister would say "yes, maybe I'll do that" or "maybe I'll call them" or "yes, I should", whatever situation was being discussed at the time... but I knew she was just going to lay down, because she didn't have the energy to cope with any more than she already was.... and she'd laugh, because she knew I knew exactly what it was like. Yes.. this is one of my biggest complaints about crohn’s disease (and Ulcerative Colitis), the lack of pain medications doctors make available. I am not a “text book” case when it comes to my crohn’s disease – a huge part of my disease is pain, plain and simple. If I didn’t have a doctor willing to give me pain medication (at his suggestion even, not mine), I’d likely find a way to get from some place else. I cannot live life in that sort of pain. I truly feel for your daughter. No one should have to live in pain. It isn’t living if you are in pain all the time, or even half the time… You can’t do normal things with your family, etc. And to have people seemingly judge on top of it.. it’s just worse.

I hope your daughter finds a good doctor – that’s hard to do too. I went through my own issues with poor quality doctors (at least in regards to my situation) and then listened to my sister this past winter as she did the same.. it’s so frustrating. With this disease (or UC, as my sister has), you don’t feel like doing any more than you absolutely have to in order to get through the day.. to do anything more just seems like a mountain you don’t have the energy to climb. My sister would say “yes, maybe I’ll do that” or “maybe I’ll call them” or “yes, I should”, whatever situation was being discussed at the time… but I knew she was just going to lay down, because she didn’t have the energy to cope with any more than she already was…. and she’d laugh, because she knew I knew exactly what it was like.

]]> By: sharon http://www.coping-with-crohns.com/70/diagnosed-with-crohns-disease/comment-page-1/#comment-70 sharon Fri, 02 Apr 2010 15:26:47 +0000 http://coping-with-crohns.com/?p=1#comment-70 I know how you feel my daughter has had crohns for years since she was 16 she is now 40 and it is a struggle to get thru the day. Thanks to a wonderful husband she does make it. She has 3 beautiful girls which they have adopted and we pray for her every day. She does have insurance but her doctor here in town has opted out of medicare and so her blue cross is no good. Now she has to find another doctor or pay cash sooooo what good is insurance when your doctor does this. Her other doctor wants her to find a gastro closer to home good luck .She drives 4 hours to the second doctor and now they want her to find one in town .She was sent up to a bigger city because nothing could be done for her here. She has had many operations since she was 16. Now the shots she gets seem to help but sometimes the pain is unbearable . I just wish doctors would listen and realize nobody wants to be on pain med but if it helps you get thru the day go for it. I know how you feel my daughter has had crohns for years since she was 16 she is now 40 and it is a struggle to get thru the day. Thanks to a wonderful husband she does make it. She has 3 beautiful girls which they have adopted and we pray for her every day. She does have insurance but her doctor here in town has opted out of medicare and so her blue cross is no good. Now she has to find another doctor or pay cash sooooo what good is insurance when your doctor does this. Her other doctor wants her to find a gastro closer to home good luck .She drives 4 hours to the second doctor and now they want her to find one in town .She was sent up to a bigger city because nothing could be done for her here. She has had many operations since she was 16. Now the shots she gets seem to help but sometimes the pain is unbearable . I just wish doctors would listen and realize nobody wants to be on pain med but if it helps you get thru the day go for it.

]]> By: Coping With Crohns » Blog Archive » Pain Management http://www.coping-with-crohns.com/70/diagnosed-with-crohns-disease/comment-page-1/#comment-2 Coping With Crohns » Blog Archive » Pain Management Wed, 06 Aug 2008 21:00:17 +0000 http://coping-with-crohns.com/?p=1#comment-2 [...] had Crohn’s for only a short time, in comparison to many.. I started the painful symptoms in January 2007.  The first several [...] [...] had Crohn’s for only a short time, in comparison to many.. I started the painful symptoms in January 2007.  The first several [...]

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