I had my second remicade treatment last week.
The morning of my doctors appointment, we had so much snow and ice, I called and cancelled the appointment – asked the nurse to just make an appointment for the remicade treatment at the hospital as planned. I got a call back saying I *had* to see the doctor before I could get the remicade. Since he was going out of town for a week or more, I had to make it in.
Thanks to my husband for getting the ice off my car and warming it up, I was able to make it in to see the doctor.
All was fine and the remicade appointment was scheduled. It all went smoothly, if not just a little slowly. I don’t know if it was late in the day that made it seem to take so long, or that I’d had a cup of coffee before the appointment and I was continually unplugging the IV, uncuffing the blood pressure cuff and dragging the pole to bathroom to go… again. But regardless of the reason, the few hours I was there seemed to take forever.
Luckily, I had four episodes of Weeds, Season 3 on my ipod and I laughed through each one. I love that show.
So, I know, what about Remicade.. well, so far, it seems to be working for me. The few days I had before the treatment I started feeling really crampy, painfully so. Wake me up through the night painful. The day after the treatment, I woke up way too early, stayed up the whole day, felt great and come night, was too jazzed to sleep… wasn’t liking that much, but I don’t think it was the medication directly.
Anyway, status is… remicade is good. I am good. I am feeling hopeful.