I had my last dose of remicade (also called infliximab) a few weeks ago. I am feeling better. At least, less abdominal pain – not gone, but less. However, about a week or so after my last IV treatment, I started getting the most incredibly sore muscles and joint aches. Muscles hurt to touch, hurt to move. Joints were so achey. So much so, I won’t carry a basket of laundry up from the basement. It’s hard enough for me to get up.
I’ve procrastinated in calling the doctor. I suppose I would just rather whine about my aches and pains than do something productive about it. No, really, I expect my GI doctor to tell me it isn’t related. And my family doctor to give me more medicine – afraid of maybe muscle relaxers, because I know they’ll knock me out. I have enough issues with not having energy.
Honestly, I have had more energy lately than in a long time. I still get tired through the day and have to just close my eyes for a bit. So far, other than this intense muscle and joint pain, I’m happy with Remicade – more energy, less pain, it’s good.
Out daughters baby shower is this weekend. I think I’ll call the doctor on Monday and see what he says about the muscle pain. The joint pain is in my shoulders and elbows (less so here), my hips and knees. Muscle pain is arms and legs – and across my shoulder blades – particularly the muscle right under my left shoulder blade…. a sharp, piercing pain that feels like stress or tension. But happens out of the blue, like just sitting on the couch, or my computer chair (which isn’t a computer chair, it’s a plush comfy chair).
Any remicade users out there suffering from crazy muscle and joint pain?