http://www.coping-with-crohns.com Thu, 02 Feb 2012 16:11:28 +0000 hourly 1 http://wordpress.org/?v=3.3.1 http://www.coping-with-crohns.com/about-2/comment-page-1/#comment-1265 pamcoz Thu, 27 Oct 2011 04:07:14 +0000 http://www.coping-with-crohns.com/?page_id=71#comment-1265 My son is 16 and was diagnosed with Crohn's a few months ago. For about a year he had SEVERE swelling in his lips (cheilitis granulomatosa) and up into his cheeks & jaw at times. Crohn's, a possible diagnosis, was ruled out because he had no other real symptoms. He was placed on steroids & remained on them for about a year. He's 4'10, started at 103 & gained 40 pounds. He also had other classic steroid toxicity symptoms. The lip swelling was reduced but, obviously, he had to be tapered off the steroids. His lips are starting to swell again, just a bit so far. The Crohn's is rearing its ugly head now and he is in severe pain. My question is: has anyone else had any experience with this lip swelling and, if so, how have you handled it? My son is 16 and was diagnosed with Crohn’s a few months ago. For about a year he had SEVERE swelling in his lips (cheilitis granulomatosa) and up into his cheeks & jaw at times. Crohn’s, a possible diagnosis, was ruled out because he had no other real symptoms. He was placed on steroids & remained on them for about a year. He’s 4’10, started at 103 & gained 40 pounds. He also had other classic steroid toxicity symptoms. The lip swelling was reduced but, obviously, he had to be tapered off the steroids. His lips are starting to swell again, just a bit so far. The Crohn’s is rearing its ugly head now and he is in severe pain. My question is: has anyone else had any experience with this lip swelling and, if so, how have you handled it?

]]>